Saturday, February 03, 2007

Well mum has been home for over a week now. Dad is just home from Amsterdam. And I am just starting to feel somewhat normal again. Life seems to be calming down in the house now, thankfully!

Mum came home Thursday 24th. She still had a small pocket of air in her lung, but the surgeon said it does take a while and was happy for her to go home. She is still very very tender and has to take things very easy. Although she doesn't grasp this word 'easy'. Yesterday she felt the need to hover the downstairs and dust. This morning, she ironed and cleaned the bathroom head to toe. Now please, anyone tell me how this is taking it easy?! Needless to say she is now paying for it and resting nicely on the sofa. But her x-ray on Thursday past, showed that there was still some air there but it was smaller than before so she is due back next week for another xray. Only the surgeon sent her home with her last one to bring in to compare next week. I have marveled over what good lungs actually look like on an x-ray. I am incredibly odd but got rather upset by this yesterday when looking at it and owing to me being rather poorly yesterday, freaked my mum out. Opps! But she is doing well and things are as to be expected at the moment so YAY for mummy!

Dad went to Amsterdam on Wednesday. God the house was soooooo quiet without him! It was very odd. He's back today and it was really nice to see him again. It had nothing to do with the copious amounts of gorgeous food he happened to bring home with him! I still think the NHS should do trips to Amsterdam for all CF patients. It puts on weight even for the fussiest of eaters!

I've been on the scales again. Gahhh. Lost alot of weight over the past few days owing to a rather horrible reaction to ciproxin. Last week I was turned into what can only be described as an 80 year old with arthritis everywhere. I literally could not move at all without wanting to cry. It started off with my shoulder hurting, but that's my bad shoulder so off to the doctors I went and she gave me some cream and some diclomax (might as well be sweeties!!!). 2 days later I was in agony not able to move. How fun. So Monday I went back and got a lovely locum GP. Normally I don't like locum's (bad experience with one a few years ago!) but this one was lovely! She did however say that it was probably viral or a form of flu. Oh joy. So all she gave me was some brufon. Needless to say I took kapake instead! But by wednesday my chest was playing up mary hell so more antibiotics were needed. Now the last time I had cipro I had a reaction but they decided to give it another go. WRONG! Bad idea. Wednesday night I was up all night throwing up and coughing. By thursday I was so not well I was barely able to stay awake. Thankfully my gran watches a doctors daughter who has said anytime we need a doc quickly give him a shout. So we did. I was super dehyrated as I wasn't even able to keep down fluids. So my port was accessed and I was stuck on IV fluids and sent home from the hospital. Or I should say I told them where to go that I was better off at home. Paul agreed to keep an eye on me for them too. By friday my stomach had returned to normal but I woke up unable to breathe very much at all. I couldn't even get to my phone to ring mum to tell her to come. So I had to lay there and freak out until I managed to get enough breath to get up and make it out of my bedroom. Oh the joys as lone behold one's grandmother was in. She panicked and so Paul was called again. Ruled out a pneumothorax, thankfully but did say he could hear alot of crakles. We rang the CF team and asked them what to do. They said more cipro but at a lower dose, as I was still on the same dose I was when I had more weight on me so that's what may have caused the reaction. WRONG AGAIN! Last night was spent vomiting. Not to the same degree as I could keep water down. But very unpleasent all the same.

So today I am starting to come round. Have upped my zithromax to 500mg for 5 days (advice of CF team if I still had reaction to cipro) and am not being sick just as much. It will take a few days for the cipro to go out of my system but still. So dad has brought lots of lovely food home with him!!!!!! I have sat for the past hour eating scary amounts of choclate and jelly sweets. Dam I can't wait until my birthday! On that note. Cris is coming out too! YAY! Dad has said he isn't allowed to share my room, but I may talk him round hehe! After all I will be 18!!

On totally unrealted note. Me and mum watched Kayne for a few hours on friday evening. He was soooooooooooo good! Although I did get soaked during bath time as he likes to make alots of splashes. But he rocks soooo much! he has developed my love of winnie the pooh and goes mad when you bring out the singing one he has. SOOOO CUTE!

Um no other new's I don't think. If there is I shall no doubt blog about it at some point hehe.
Take care
xxx