Tuesday, August 28, 2007

Frostbite, renuions and more pup pictures

Yesterday was a very busy day (I'm now paying for it today, have nooooooo energy and am rather puffy but oh well). I had to go get my new school uniform, due to me being over 2 sizes smaller in my skirt than last year and a size smaller in my jumper. This may or may not be due to the fact that I have lost stupid amounts of weight which is refusing to come back. I think it's headed off to sunny Italy or such likes. Anyyyyways after alot of trying on uniforms (mainly because I was adamant I was bigger size than I turned out to be) I headed home to have a shower, something which I hate simpley because I cough a few lungs up at the same time. But had to take Boe to the vets for his last injection and to get advice on travel sickness. Oh yes, my puppy gets travel sick. Beautiful:| I have lost all squeamishness since getting him. Oh well, the things you will do for something/someone you love!! He was soooooooooooooooooo good. Now the vets waiting room is always highly entertaining, last night was no exception. A rather large dog (I think it was a springer spaniel, also named Boe :D) decided it would fun to drag its owner round in circles and then stop at our feet and everyone elses to bark at them! The poor owner was a heavily pregnant lady who, no matter how hard she tried, got dragged whether she liked it or not!! When the vet then called said dog in, he proceeded to plonk himself down and not move!! It took two other men to lift the dog in for the vet and the owner. He was not impressed and bounded out the door when leaving!! Anyhoos my Boe was an angel, as was the vet. I can't speak highly enough of her, she really is an angel. When biggle's was put to sleep she was the one to do it and she was so gentle and caring with us all, it really helped, she was also almost in tears. She is a woman who really cares about what she does!

Last night however, I met up with Orla and Emer. Me and Orla very rarely see Emer any more, but it's great when we do meet up. We spent years being amazing friends, and even now we can pick up where we left off. It's great! So last night we went to see 'Knocked up' not a bad film, some very funny moments, but some just down right wrong :| But a great night was had except when Orla met some fella outside the cinema and decided it would be a great idea to sit outside talking for almost an HOUR!!!!!! Thankfully I climbed up on the railings and sat, but me and Emer were froze!!! Over all though a very fun night was had and we have promised to do it again very soon.
I shall leave with more puppy pictures :D






Thursday, August 23, 2007

New addition to the family

Well after almost 2 years we got another dog. There was alot of mixed emotions, alot of sadness and alot of guilt. We thought that we might be insulting biggle's memory to get another dog, but no-one could ever replace him and so we started looking. But there was alot of excitement, I was a bouncing tigger!! We were goingto get another cavilier king charles spaniel, but a cairn terrier came up and we had no idea what they were so off to look them up in the kennel club and he seemed perfect! So off we set and just over an hour later we had found the perfect, most amazing little pup for us! He was the last of the litter, simply because he was the boss of the litter! Boe is a cheeky wee character and is just soooo loveable! That was almost 3 weeks ago and he has settled in sooo well! We are all sooo glad that we got another puppy!







Bar that not much to say, or at least not for now lol. Hope all is well
xxx

Thursday, May 31, 2007

The difference a year makes.

Well it's been a year since I passed my driving test. I officially took down my R plates this morning. So much has changed in the past year. I passed all my GCSE's with better grades than I could have hoped for. I have the most amazing godson, who brings me huge amounts of happiness and makes me smile any time I see him. My health has been incredibly stable since my last set of IV's. I put this down too the fact that it's exam time again and my lungs always seem to fall into line. It's great! I also have a huge amount of freedom now too which was the main point of me learning to drive at 16.
Bar that not much to say really, or rather I couldn't really be bothered and will blog at a later date, or going by the date of my last blog, in a few months!
Hope all is well. xxx

Saturday, March 17, 2007

I now have developed a serious problem over the period of around 8 hours. I have gotten a laptop. Hurrah! It has now become my third arm. I love it. I havn't moved all day from it. Or rather it has been carried round with me to wherever I move to. It's great! I now just need to add MS Office to it and I will be laughing! It rocks! I am truely in love. So I am now sitting here, on the sofa, writing this smiling to anyone who will look. I've not gone crazy I swear!

On other topics. Cris has decided I'm spoilt. This being on the fact that I am tinking about changing my car. However I want the Focus version of my Astra, with all the added extra's. However, this will cost £850 deposit. He has said the Zetec version has all the added extras as well. But I won't believe him until I see it. But he also thinks that just because I get annoyed with my car I shouldn't be allowed to change it. But my arguements are valid. I cannot see my bonnet! I'm simply too small! When I first got it I still thought I had a chance of growing. But I haven't. So I went to look at the Focus's and fell in love. I have yet to test drive as my joints were too sore to drive until yesterday so I shall do so sometime this week and make up my mind. But the Astra is so much work to drive. Mum and dad have a focus. It's nice and easy to drive. Its comfortable. Most of all I can see where I am driving!! It's awesome. So I shall test drive and see.

Anyhoos, I have 3 history essays to write for Wednesday. Not happy. It will take hours!!!!!! EEK! I think all homework should be banned for 6th formers. We rock the school and should be alllowed to relax and simply learn all our stuff! I doubt teachers would agree but I can always suggest it. Physics is great. We just drink hot chocolate and pretend to be working! ICT has coursework completed and we just have module 2 to complete which should be easy enough. Although ask me how I'm feeling about them all come exam time it could be very different! They seem just round the corner from now and going by last year. They are! I also have a practical this year which I've never had before. Should be interesting to say the least. I do however feel incredibly sorry for people sitting GCSE's. My friend is ready to sit hers and she is having a canary. I remember that feeling. Like it was the end of the world. But this year we haven't had a chance to wind down from GCSE's before we sat modules and we are sitting more now in May/June so we are still in exam mode. Whereas this is their first set of big exams since the 11+. No other exam they have sat puts this amount of pressure on them. It's very odd to look back on last year and realize that I was them. Only worse. I had nerves which made me sick on numerous occasions. I had the hugest amount of fear that I would be a total failure if I didn't succeed in these exams. Now I know they can be re-sat. It is not the end of the world.

Bar that not much else to report. Paddy's day went very uneventfully except we are going to get blown to pieces if we decided to venture outside. Oh joy.
Take care all.
xxx

Friday, March 16, 2007

Catch up time! Um I'm gonna keep this short as I'm all emotional and it could get rather long!

Mum is healing well though still not fully there yet.
I got my module results. I got an A in ICT. Top in the school. I got a B in History. Resitting it in Janurary.
Weight is down again. Now almost 4 weeks post IV's and still alrightish. Very wheezy and short of breath though.
Paddy's day tommorow and I really couldn't be bothered to do anything. I just want to hide and sleep.
That is my life atm. Sleeping.
Possibly why I am still feeling okish after 4 weeks but hey.
School is becomming a huge struggle now. I'm not sure how I will cope next year. But that is then and I will worry about it when it comes.
We are really thinking about getting a dog. This is the first time all 3 of us have wanted one since Biggles died. But it's now killing me thinking I'm being disloyal to him by wanting another. Not sure what I want to do now.
Kayne is now a huge brusier and has me wrapped round his little finger. Like everyone else then! He is so big now its amazing to think that he's 5 months old already!!!

Not really much else to report as I've slept alot and done not much.
Hope everyone is well and I'll do a proper update soon.
xxxx

Saturday, February 03, 2007

Well mum has been home for over a week now. Dad is just home from Amsterdam. And I am just starting to feel somewhat normal again. Life seems to be calming down in the house now, thankfully!

Mum came home Thursday 24th. She still had a small pocket of air in her lung, but the surgeon said it does take a while and was happy for her to go home. She is still very very tender and has to take things very easy. Although she doesn't grasp this word 'easy'. Yesterday she felt the need to hover the downstairs and dust. This morning, she ironed and cleaned the bathroom head to toe. Now please, anyone tell me how this is taking it easy?! Needless to say she is now paying for it and resting nicely on the sofa. But her x-ray on Thursday past, showed that there was still some air there but it was smaller than before so she is due back next week for another xray. Only the surgeon sent her home with her last one to bring in to compare next week. I have marveled over what good lungs actually look like on an x-ray. I am incredibly odd but got rather upset by this yesterday when looking at it and owing to me being rather poorly yesterday, freaked my mum out. Opps! But she is doing well and things are as to be expected at the moment so YAY for mummy!

Dad went to Amsterdam on Wednesday. God the house was soooooo quiet without him! It was very odd. He's back today and it was really nice to see him again. It had nothing to do with the copious amounts of gorgeous food he happened to bring home with him! I still think the NHS should do trips to Amsterdam for all CF patients. It puts on weight even for the fussiest of eaters!

I've been on the scales again. Gahhh. Lost alot of weight over the past few days owing to a rather horrible reaction to ciproxin. Last week I was turned into what can only be described as an 80 year old with arthritis everywhere. I literally could not move at all without wanting to cry. It started off with my shoulder hurting, but that's my bad shoulder so off to the doctors I went and she gave me some cream and some diclomax (might as well be sweeties!!!). 2 days later I was in agony not able to move. How fun. So Monday I went back and got a lovely locum GP. Normally I don't like locum's (bad experience with one a few years ago!) but this one was lovely! She did however say that it was probably viral or a form of flu. Oh joy. So all she gave me was some brufon. Needless to say I took kapake instead! But by wednesday my chest was playing up mary hell so more antibiotics were needed. Now the last time I had cipro I had a reaction but they decided to give it another go. WRONG! Bad idea. Wednesday night I was up all night throwing up and coughing. By thursday I was so not well I was barely able to stay awake. Thankfully my gran watches a doctors daughter who has said anytime we need a doc quickly give him a shout. So we did. I was super dehyrated as I wasn't even able to keep down fluids. So my port was accessed and I was stuck on IV fluids and sent home from the hospital. Or I should say I told them where to go that I was better off at home. Paul agreed to keep an eye on me for them too. By friday my stomach had returned to normal but I woke up unable to breathe very much at all. I couldn't even get to my phone to ring mum to tell her to come. So I had to lay there and freak out until I managed to get enough breath to get up and make it out of my bedroom. Oh the joys as lone behold one's grandmother was in. She panicked and so Paul was called again. Ruled out a pneumothorax, thankfully but did say he could hear alot of crakles. We rang the CF team and asked them what to do. They said more cipro but at a lower dose, as I was still on the same dose I was when I had more weight on me so that's what may have caused the reaction. WRONG AGAIN! Last night was spent vomiting. Not to the same degree as I could keep water down. But very unpleasent all the same.

So today I am starting to come round. Have upped my zithromax to 500mg for 5 days (advice of CF team if I still had reaction to cipro) and am not being sick just as much. It will take a few days for the cipro to go out of my system but still. So dad has brought lots of lovely food home with him!!!!!! I have sat for the past hour eating scary amounts of choclate and jelly sweets. Dam I can't wait until my birthday! On that note. Cris is coming out too! YAY! Dad has said he isn't allowed to share my room, but I may talk him round hehe! After all I will be 18!!

On totally unrealted note. Me and mum watched Kayne for a few hours on friday evening. He was soooooooooooo good! Although I did get soaked during bath time as he likes to make alots of splashes. But he rocks soooo much! he has developed my love of winnie the pooh and goes mad when you bring out the singing one he has. SOOOO CUTE!

Um no other new's I don't think. If there is I shall no doubt blog about it at some point hehe.
Take care
xxx

Monday, January 22, 2007

Hurrah! Mum escaped home for an hour tonight!! Albeit no-one knew but we literally live right beside the hospital so she was safe enough. But she came home and I washed her hair while dad went and got a chinese for dinner. It was lovely to see her and to get a cuddle. I was right about my parents can make it all ok theory. Somehow things seemed better tonight after seeing her. I am much more contented that she is OK. Bar the fact that she is going mad in hospital. A lovely patient 2 doors down is yelling. Permently. Personally I would kill her. But this is against the law so mum has had to suffer it! Her drain is still in, which we were getting worried about except the physio has since said where still needs infelated, is notoriously the hardest place to re-inflate and does take that bit longer. Why can't we get all the facts to begin with to save us worrying so much?! But she has now been able to get all 3 balls up this evening which is another huge step. She said getting her hair washed made her feel normal again, and now she knows why I like my showers and stuff so much when I'm in hospital. So hopefully the drain will be clamped tommorow and she will be home the day after if her lung behaves which it has been doing so far.

I managed to stop pain killers for my back yesterday as it wasn't too bad, it was within the manageable pain parameters. But today I woke up and my shoulder has decided that it no longer wishes to be nice. Dammit! I am going to go to the doctors tommorow after my exam. Which should be fun as I am currently typing one handed as I cannot move my arm in any shape or form, plus writing is impossible, I have tried! It should be intresting to see how I plan to write 6/7 pages tommorow without pain killers (can't take any strong ones as they make me drowsy which would make me useless to do an exam!) EEK! Natalie has suggested that this is my body's way of protesting against a hidious exam. I am inclined to agree with this! My chest has also been playing up majorly yesterday and today. Just general shortness of breath and alot of wheezeyness along with incresed gunk production. I was quite proud of one of the plugs I got up earlier. It was HUGE and very green. Me and dad marveled at it for over 10 minutes. Yes I know, we are strange! Hehe.

I mentioned a while back that with my month or so off school it was a kind of tester period. The results show that with rest and purely taking care of myself, my health stays pretty stable. This leaves me in the debate of what to do about school. I am not keen to give it up. School is somewhat of an escape for me, where I can just be me. I have always done well in school. So the thought of giving that up crushes me. It also keeps me in touch with my friends and with reality! So giving it up is not an option. I am thinking maybe cut my hours? Take one day a week off, say a Monday or a Friday so I have 3 days to rest? I'm not sure yet but will talk it over with mum and dad once mum is home. It won't be an easy choice whatever I decide to do but I know my parents and my school will be 100% behind me whatever I choose.

On a very different topic. Mum and dad were due to go to Amsterdam Wednesday week with a few friends, but mum now can't go. So me and mum have now decided that dad is going anyway and his brother is taking mum's place. He has always wanted to go so this is the perfect opportunity. This leaves me and mum at home for a few days alone. We are planning to be very girly and watch lots of girly films and eat lots of ice cream. I'm planning on taking her out to her favourite restraunt as a suprise because she's missing out on Amsterdam. So it should be fun. Plus dad will deserve a break by the time he's due to go. He's shattered now running up and down to the hospital to mum. I am taking care of the house so he doesn't have to worry about me or it, but it is still stressful for his. Especially as his mum was up this morning for some tests. She now has one thing or another wrong with every joint and limb in her body. Quite an achievement I think. She can't even take any pain killers because of her kidneys so during flare up like at the moment she is in agony and can't do very much so dad has had to run over to her house to look after her and his sister (she is disabled). Bless him he's being amazing for everyone! My parents rock! Hehe.

Hmm babbling now.
Take care all.
Xxxx.