I love days like those

I spent Wednesday-Friday with Cris but also in hospital. He stayed up with me. We went back to his dad's in the afternoons though. It was really lovely. Thursday was by far the best day though. We left the hospital at 2ish and didn't have to be back till 11. We done nothing! It was wonderful! We sat in the house, ate Ben and Jerry's (by the way, never EVER have a compitition to see who can finish a tub of pish food first. All participents will end up being sick down the toilet or sink), watched TV, played warcraft, and were generally very lazy. The only time either of us exerted ourselves was skateboarding round his back garden which is tiny. I did find out I am not a skateboarder. I landed on my ass ALOT, much to the ammusment of Lilly (Mark), Paul and Cris. So that is now out the window as a career option! But I love days like those. It was just very relaxing and lovely. I love spending time like that with Cris where we don't have to do anything, where we can simpley enjoy being there in that moment. Now that he is so far away it is harder for us to get time like that as when we meet up we generally have so much planned. The highlight of the day was sitting outside, wrapped in a blanket watching the sunset in his arms. It was really peaceful and lovely. Spending those few days with him were amazing. It always reminds me why the hell I love him so much, why I will always love him and why I could never let him or make him leave my life. I wouldn't be complete without him. But the downside is, after times like this where we spend a few days together, neither of us know where we stand, it's hard, we might as well be in a dam relationship, but being so far away it's hard and not fair on either of us. Though it's not like either of us have been with anyone else recently. Bah I don't know. Plus now that I'm home I miss him like hell. I spent ages today on the phone to him, and have only came off so we can both get some school work done. Grr. Get to see him on Thursday hopefully though. I am in Blefast at clinc and am heading into town to a piercing studio, I refuse to go near all the places in Derry to get pierced as they are hell holes. So he is coming in to, partly to hold my hand and partly to get pierced himself so get to spend a few hours with him then. YAY!

Oh dear I have waffled on there. Opps. On other matters, my lungs are being nice and actually improving a bit :O Used the bird while in hospital and it helps so yay! Plus we are now doing more Iv drugs just to blast any and all infection.I also hate all doctors that are not my CF team. They think they know all about CF and can tell me what to do. Um NO! I should explain, my CF doctors are in America at the moment. So another doctor has been left in charge of us. She tried to tell me that I shouldn't be using my o2 as much (even though my sats drop alot with any exerction etc) she also thinks that I should eat more, even though with the appetie of a hamster I am eating a fair bit. Now this is the icing on the cake. She tries to change all my treatments. IV's included. My IV's and stuff had been pre-arranged with my CF team the previous week so I knew what I was supposed to be on. Oh and apparntly my life should revolve around my health. Don't get me wrong, I take really good care of myself, but my life never has and never will revolve around my illness. Plus this really pissed me off this bit, she told me I should go on the pill. Now A) it doesnt work properly if at all with CF, surely being a doctor she should know this. B) If and when I want to go on any form of contraception I will bring it up with my CF team, not her a complete numpty. GAH!

Ok so for much nicer stuff now, Kayne! Seen him earlier today. That kid rocks socks!!!!!!!!! He is doing really really well now which everyone is happy about plus he is now taking 6oz bottles. YAY! He kept similing today which was so cute! He is getting even more like his daddy now. Um bar that not much else. Oh no, he is sleeping almost through the night, well 5 hours which for 3 weeks is bloody great. Very proud of him hehe. Shall upload more pics in a bit but going now to actually do some work. EEP!!!!!!!!!!

Love and cuddles
Neesh
xx