Well my lovely mum is still attached to her chest drain. This morning's X-ray showed a very small amount of fluid at the top of the lung so once this goes the drain can come out. The surgeon was very happy with her. We are all also alot more contented as the nurse did say it can take up to 5 days to heal. Some people can take longer. So dad took her up a TV today. She is now managing to get the third ball in her blowy thingi moving, which is uber good so YAY! Other than that she is doing well, in a bit more pain than yesterday, but as dad keeps telling her, pain is good as it means she is healing!
On other matters. I was looking through the CF forum tonight and seen a topic on having another child after one with CF. This is, for all concerned a very emotive subject. My mum and dad choose not to have any more children. They thought that it wouldn't be fair if the child had CF. Not only on it, but on me due to cross infection issues and ineviatbly loosing a sibling. They also decided against any means of testing if the child had CF as they thought in years to come that it might make me feel inadeqaute as they choose NOT to have another child with CF. That in some way I wasn't right. They also couldn't tell that child that we only choose to have you because you didn't have CF. That isn't fair on either child. And I guess I can see their reasons as yes it would make me feel horrible knowing my parents thought I wasn't right. I wouldn't however wish CF on anyone let alone a sibling!
I am incredibly happy as an only child. My parents are amazing and I love them to bits. They are incredibly supportive. But I do know that they do blame themselves for my CF sometimes. Which was another factor. They couldn't willingly bring another child into the world knowing it stood a chance of having CF, because if it did. Simply, they would, this time be to blame. First time round is plain bad luck. Second time round is, in my opinion selfish. It should never be about a parents want for other children. It should be about the child and the fact that they will have to live with this horrible illness. The CF prognosis might be improving, but the fact is, it still sucks to have, you have to live by a gruling regime of medicines and treatments. And inveitably, it will kill you! How could you have a child knowing that they would have such a life? Now I'm not saying a life with CF sucks. Mine rocks. I love it. But I am dam sure I would love it a whole lot more if I didn't have to sit doing treatments for hours a day, be tied to oxygen all the time, have the hospital be like my second home, and see so many close friends die, some right in front of me!
I am not however condeming people who have second children, but I do think those that just trust luck for the child not to have CF are incredibly selfish and stupid (yes I know thats horrible but it's how I feel!). Each family will make a very different choice on what is right for them. My parents made their choice, and to be honest I think they made the right one. As I said previously this is an incredibly emotive subject so this is just how I feel on it. Every single person will feel differently about it. And each opinion I value equally as each person has their right to it.
I don't really know what the point of this blog is, but I'll post it anyway as it's made me feel slightly better.
Take care all.
Xxxxxx
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